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NPC ( nasopharyngeal cancer)

Hi, I'm Megpie

Mri

  • Post #1
  • Tue Mar 5, 2019
Hi, I'm Megpie

Many of you probably never heard of NPC. I have been dealing with it for the past 6 years. I was first diagnosed in 2013. My family urged me to get it treated right the way. I was In NYC that time. So I got radiation and cisplatin chemo. I got back to ga in Sept. I didn’t think cancer would came back. It did in 2016. Emory said they could have it removed via endoscopic surgery. Nope they couldn’t do it and there nothing more they could do. I tried many different options, no matter what the tumor was keep growing. I ran out of space on my head. I started to feel dizzy and nauseous.
I am scheduled for another mri in 2 weeks. I am really scared as I really didn’t get any good news from mri report.

  • Post #2
  • Tue Mar 5, 2019
Moderation in all things...including moderation.

Hi Megpie,

Another Georgia native here, also have had cisplatin and radiation. I’m sorry your cancer has recurred. It sounds much like what happened to Jim Kelly, the football player. He too has had a tough time with recurrence, but has continued treatments and is still fighting. I hope your fight continues and will pull for you. I’ve no words of wisdom, only wishes that your situation improves.

Drew Boswell

  • Post #3
  • Sat Mar 9, 2019
Hi, I'm tactical

Hello Megpie, sorry that you are going through this “Bend in the Road” as Dr. Jerimiah calls them. While I was going through Proton Radiation Therapy for prostate cancer last year, we met 3 people that were having treatments for nasopharyngeal cancer. I finished in July and have kept in contact with the gentleman that was closest to our group of patients. I heard from his wife last month and he was doing fine. If you would like more information or a consultation contact the Provision Proton Center in Knoxville, TN. I am the leader of the Tri-Cites Proton Support Group and would do what ever you should need if you contact me. God Bless and better days lie ahead.

Joe Stallard

  • Post #4
  • Sat Mar 9, 2019
Liz
Liz
Hi, I'm Liz
Liz

I am a firm believer of using frankincense oil on the areas of the cancer. I was diagnosed with stave IV lung cancer in October 2018. They don’t see any cancer right now and the bones are regenerating, plus the baseball size tumor has totally resected on its own. I’m sure the chemo and immunotherapy played a big part in this, but again frankincense is where my faith is. I also use sandalwood on the bottom of my feet. Faith is first and foremost for me. Both in my God and in my oncology team.

  • Post #5
  • Mon Mar 11, 2019
I'm PEGGY F., and I'm a survivor of Myelodysplastic Syndrome

I am new here, have MDS, not NPC, so If I ask anything inappropriate, please tell me. I’ve used oils with success for other issues, like bone infection in jaw, fibromyalgia. When you say you put the frankincense on tumor “wherever the tumor was,” do you mean on the skin covering the tumor, like the chest wall and the bone? or something else?
I got good results with bottom of feet, did that, but"slacked-off" and my feet have become dry and crusty again. Will restart, inspired by your comment. I do believe there is a synergy between essential oils and medications. But I get too tired, distracted from other responsibilities and get out of the routine.

  • Post #6
  • Thu Mar 14, 2019
Hi, I'm Giovanna

Hi Megpie,
I’m sorry that you are having a rough time right now. My husband had a rare stage 4 Sino nasal undifferentiated carcinoma 4years ago. He had surgeries, two different chemotherapy drugs concurrent with 7 weeks of head and neck radiation. He went to the Perelman Cancer Center of the University of Pennsylvania. They also have Proton Therapy there. My husband is doing well right now. You should look into Proton Therapy. It depends on your situation, of course, but it can’t hurt to look into it. I wish you success in your battle.

  • Post #7
  • Sat Mar 16, 2019

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