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Breast cancer

Hi, I'm CHERYL L S.

Helo. I was diagnosed with invasive carcinoma breast cancer.
Had a lumpectomy done Jan. 3 ,2019
Removed mass . Lymph nodes biopsy came back negative. All margins negative.
Breast specialist recommended further testing and wants me to do radiation.
Er and pr positive . Her2 negative. Oncotype score 15.
Doctor said all the results are good .
Referred me to oncology dr.to discuss treatment options.

Even though my test came back good , oncology does still wants me to do 4 weeks of radiation.
I asked the nurse , if all my results are good . Is it necessary to still do radiation..
She said YES. It’s added protection .
I’m so overwhelmed.
I have been reading so much on line. I’m so scsredvto do the radiation in fear of the damage it does to other organs. And the side effects.
I’m scheduled to start radiation next week. And am questioning if it’s even necessary?
Looking for accurate resources to look and read in line.
All input and recommendations needed.
Cheryl

  • Post #1
  • Mon Feb 18, 2019
Hi, I'm Betti

Did they say anything about radiation that is done for 5 days twice a day? My friend did that, they put a special catheter into the cavity left by the lumpectomy and inject a radioactive material that is released into that cavity. The only issue she had was fatigue but she was done in a week and not the 5 1/2 I did (once a day for 28 sessions). It may be something to ask about as not all facilities have the capability to do it.

  • Post #2
  • Mon Feb 18, 2019
Hi, I'm Louise

I was diagnose with DCIS. had a lumpectomy on 9/27/18 my er and pr was positive and my Her2 negative and my oncologist wants me to take Femara for 5yrs. Taking this medicine gives me a 50/50 chance of my breast cancer not coming back. I am so confuse if it’s worth me taking because of the side affects.

  • Post #3
  • Tue Feb 19, 2019
Hi, I'm Ruth A P.

You might not have any side effects. I have been on Anastrozole since July 2018 for ER/PR+ HER- invasive ductal breast cancer and I have non of the side effects listed for this drug. I am getting the Prolia shot because I have weak bones and this drug can make that worse.
But no joint pain or aches, hot flashes etc. Every one reacts differently to medicine. Have faith and trust God will get you thru this.
It has worked for me.

  • Post #4
  • Tue Feb 19, 2019
Hi, I'm Betti

I had a couple of friends who were diagnosed in the last year, elected bilateral mastectomies, and will be on Letrozole for 10 years as they are finding 10 is better than 5. I completed 5 years on it 6 months ago, did a special test to see if another 5 years would be of benefit and the findings said no (only about a 5.7% chance of recurrence). Like my Dr. told me it’s no guarantee it won’t return even if I were to go another 5 years but I like my odds.

  • Post #5
  • Tue Feb 19, 2019
Hi, I'm Kerry H.

I had the brachytherapy that was mentioned above, where a squid looking thing with tentacles (I know, sounds strange) is inserted in the side of the breast. It lays flat until they go to do the radiation, and then it is expanded to touch all sides of the cavity, and taken back down after each treatment. Radiation only touches where the lump was removed, and they calculate the different radiation need in each “arm” each time you go in. This ensures the radiation is touching all parts of the cavity – where and the amount it should, and not the rest of your chest. Twice a day for 5 days. They keep the devise in during that time. I found it very easy, not painful and totally done in a wk. The only negative is the scar tissues is the size of the brachy that was inserted. I don’t know how much scar tissue others have not using the brachy, so I can’t compare. I would do it again. This was in 2013. Have been taking Anastrozole this whole time. Will see after my next bone density if I will continue to take it. I would do it again. For awhile I had joint aches from the Anastrozole, but has since gone away. I like the med better because the risk of blood clots is lower, but I am having some hair loss (minor thinning, not bald spots), but nothing serious. I think when I stop taking it, it will grow back. Apart from my deductible, my insurance paid for it all. BUT back then they said they’d only approve it for women 62 or older. I wasn’t, in my 60’s, and thought I had been approved for the procedure (but wasn’t), but ultimately my doctor and health insurance broker went to bat for me and won. So if you go that route ensure they approve it for your age before treatment because it is REALLY expensive. Sorry this is so long. Hope it helps.

  • Post #6
  • Wed Feb 20, 2019
Hi, I'm Kerry H.

PS my radiologist doctor was at LDS. He had studied and performed the procedure back east before coming to Utah where the device had been improved

  • Post #7
  • Wed Feb 20, 2019
Hi, I'm LAURA J M.

I just finished with my 3 month follow up exam after radiation following a lumpectomy for invasive ducal carcinoma and DCIS everything is healing fine. I am on anastroloze for 5 years. The radiation is fine it reduces your risk of future cancer. Use the Aloe they give you right after your treatment so your skin will not react. I got a good tan but no burn or skin damage. The hormone blocker may cause side effects. Drink plenty of water, 60 – 80 oz. a day. The first month may be bad but then the side effect slack off but do not stop drinking the liquid. Now I have a hot flash now and then and a night sweat maybe twice a week. The pain in my back is gone and every time I have a hot flash I remember the drug is working and the cancer cannot grow. Remember to use the Aloe after every radiation treatment before you put your clothes back on, carry it in your purse and use it every time. It will save you from a lot of discomfort and pain. It is not as bad as you read on the internet. You can make it through this and recover. The healing process can give you some pain but at that time remember that you are healing.

  • Post #8
  • Wed Feb 20, 2019
Hi, I'm Marybeth

Cheryl, I was diagnosed with ER/PR + HER2 – combined DCIS & Lobular invasive BC in Jan 2018. Had a Lumpectomy with clear margins and negative lymph node. Onco score of zero w/Tamoxifen for 5 years. Since I had left breast ca the radiation was deep inspirational, designed to move the heart out of area of the beam. The treatment was once a day for 33 days, less than 5 minutes a day.

  • Post #9
  • Sat Feb 23, 2019
Hi, I'm Mari

I was diagnosed with Invasive Lobular Carcinoma Breast Cancer in one breast in February 2018. I chose a bilateral mastectomy over a lumpectomy due to the size of the tumor. By God’s Grace I had negative lymph nodes and clear margins. My onco score was 15 so chemo therapy was not suggested. Since I chose the mastectomy and lymph node involvement was negative, I did not need radiation. If you are questioning any treatments suggested by your oncologist, get a second opinion. I have spoken with several doctors throughout my treatments: oncologist, surgeons, gynecologist, and my family physician. It has helped me make several decisions about my treatment. You have to feel right about your decision and your treatment plan. Research and be open about your concerns with your oncologist.

  • Post #10
  • Sat Feb 23, 2019

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