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Small cell Lung Cancer

Hi, I'm June

Are there any patients or family members out there that want to discuss small cell lung CA? Or is it so deadly that no one is around to discuss it. Sorry to be blunt but I am so down and defeated today about my dx. I feel ok today, but who knows what tomorrow will bring. I am alone and afraid and the statistics are really bad for my stage.

  • Post #1
  • Sun Aug 26, 2018
Hi, I'm Debbie B M.

Don’t let the internet get you down. If you read it, you will be convinced that death is imminent. I’ve been there and done that. The diagnosis is overwhelming and frightening so we go where we go for most information—the internet. After my diagnosis, I had to “swear off” researching lung cancer. There are so many new treatments out there now and more being developed all the time. It seems like they’re on the right path. Be sure you have a really good oncologist and if you don’t— get one. Find someone you trust and are comfortable with. Preferably someone that only does lung cancer. I have heard many horror stories of people being treated in small rural hospitals. I would also recommend that you have genetic testing done on your cancer so they can really “target” an appropriate treatment for you. Cancer (I even hate to use the word) is as much a mental battle as it is physical. I sometimes think even more mental than physical. It’s a lot harder to “live like you were dying” than the song would lead you to believe. I would suggest really coming to terms with your own death, so you can look forward to your life. Hey, we all die. Just some of us get the warning. God has been my constant companion through this and I wouldn’t be able to get through it without Him. When the fear comes, I give it to Him. Easy to say—hard to do, but it works. I wish you good health and peace of mind. You can do this!

  • Post #2
  • Sun Aug 26, 2018
Hi, I'm CYNTHIA S.

As far as a diagnosis goes, no one knows what the actual thing is. So don’t give up. Statistics are only numbers—not real people. Every second of every day is worth living; and living well. Forget obsessing on the internet. Sure some of the info helps; much hurts. If I lived near you I’d take you out for a coffee right now and have some laughs. Each of us gets scared, pissed off, envious, desperate, lonely, bewildered, afraid and on and on and on. Don’t feel alone. We are all here for everyone. Reach out. I’ll do whatever I can. Keep God near. HE is in charge, no one else. And know you can do this. Let me know what I can help you with. Cindy

  • Post #3
  • Sun Aug 26, 2018
Hi, I'm June

Thanks for the kind words. I am not getting information from the internet, except to access pubmed, national library of medicine and journals to which I subscribe. My statistics come from scholarly articles and there are not any treatments for small cell lung cancer except for chemo , radiation and in some cases, limited types of immunotherapy. Getting genetically tested for lung cancer isn’t done. Not to be defeatist about this, but did anyone of you have small cell lung cancer? It is an entirely different entity than NSCLC. And mine is wrapped around my pulmonary artery. I would like to find a local support group for sclc but people don’t live long enough to start one. Had a bad day yesterday but am determined to find some happiness today. Not sure how. Thanks

  • Post #4
  • Mon Aug 27, 2018
Hi, I'm CYNTHIA S.

Hi June, I have NSCLC and you’re correct it’s way different. That said, I’m not sure if geonomic testing works the same for yours? It shows the factors prevalent. Immnotherapy has gotten GREAT reviews. There’s many Clinical Trials too I think? I don’t know a ton about any of this and I’ve had some real lousy medical care, but what I do know is the mental aspect is the most important. Think good thoughts and it “naturally” breeds good vibes and chemicals in your body. I know it sucks some days—for all of us—but I found that works best regardless. Where are you located? I’m in south Florida. Know we all care. Tell me how I can help. Cindy

  • Post #5
  • Mon Sep 3, 2018
Hi, I'm June

I think my actual physical care has been ok. I have gotten the correct therapy for what I have. And you are so right!! I do try to have a positive attitude and have a visualization and gratitude time every day. I even have a nickname for my natural killer cells so I can “cheer” them on. Live in Texas, in a city with good facilities and have just changed to an oncology group that is great. My goal is to live 10 more years, and if my small cell can stay under control, the atypical carcinoid component of my tumor might grow so slowly that it can happen. Have been trying to find a small cell support group because I know that sharing thoughts and experiences along the way is helpful.

  • Post #6
  • Wed Sep 5, 2018
Hi, I'm CYNTHIA S.

Hi June I was just thinking about you. That plan sounds fine! Name those killer puppies (kittens etc) and keep talking to them like they’re cleaning your house out-sweeping out the garbage. We all have so many days only. Say to yourself, today is Sept. 5. If I know I would die on January 12 (etc etc etc) what would I be doing till then. Laughing, eating good food, talking with great friends, being in the sun, coffee clatching on and on and on. That’s life. That’s what we get—each of us. One of my daughter’s in-laws had breast cancer in 1999. Back then it was certain death, and soon. Her daughter was 5. They said she’d die by the time the daughter went to 1st grade. They actually told her that! She disavowed it. Went to Colorado for natural treatments, juiced, on and on and on. Got married again. Lived life! Cooked awesome cheesecake, had my grandkids’ birthday parties every year, made super thanksgiving dinners, did yoga, went shopping on and on and on. She lived till 2013. Her daughter was a freshman in college. You can do this. My BFF lives in Waco. Used to live in El Paso. I like Austin and Marble Falls and the Johnson ranch. where are you. And honestly thank your lucky stars you have good health care. That’s the most important thing! peace to you, Cindy

  • Post #7
  • Wed Sep 5, 2018
Hi, I'm CYNTHIA S.

Just thinking about you June and wondering how you’re doing? Cindy

  • Post #8
  • Mon Sep 10, 2018
Hi, I'm June

Created a post to this discussion, then left for a moment because my water softner was being replaced and the post went away!! Anyway, I am ok. I know Waco well. My nieces and nephews went to Baylor so was up there a lot. And also love the Hill Country. It is very peaceful. Thanks for the message, Cindy. Hope all is well with you—June

  • Post #9
  • Wed Sep 12, 2018
Hi, I'm CYNTHIA S.

My BFF lives the block or so over from Baylor. Near downtown and the silos. There’s an awesome Mexican food restaurant there! I hope you’re doing okay. I’m reading a good book called “Why Millions Survive Cancer” by Lauren Pecorino. Very easily explained scientific aspect of how, why cancer gets started and treatments. Its 2011 so it’s “dated” to today’s new “cures” but worth the read.

  • Post #10
  • Sun Sep 16, 2018

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