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Mycosis Fungoides (Including Sézary Syndrome) Discussions

Latest Posts to Mycosis Fungoides (Including Sézary Syndrome) Discussions

Hi, I'm Betti
Insurance companies generally encourage 2nd and if need be 3rd opinions. It sounds like you may need to find a different Oncologist as that is no way to act towards someone. I know when I had my ...
2
  • about 6 hours ago ·
Hi, I'm Mr. Glenn
I have neuropathy, osteoarthritis in my hips. I've been trying to get a medical marijuana card until then I obtain mine by any means necessary. I can't do the pharmaceuticals for the inflammation ...
8
  • Thu Mar 21, 2019 · Like6
Hi, I'm Giovanna
Hi Megpie, I'm sorry that you are having a rough time right now. My husband had a rare stage 4 Sino nasal undifferentiated carcinoma 4years ago. He had surgeries, two different chemotherapy drugs ...
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  • Sat Mar 16, 2019 · Like2
Hi, I'm Ria1
Hello there.sorry this is happening to you at such an early age and being pregnant also. I am new hear as well. I was just diagnosed on 2/14/19 with Ductal/ Metaplastic Carcinoma. I have had a lu...
2
  • Tue Mar 12, 2019 ·
Internet Age version of the answering machine message
Both my primary care doctor and oncology nurse recommend miralax daily and drinking 2 liters of water daily.I have been doing fiber like Metamucil daily since surgery in December. Now that I take m...
3
  • Mon Mar 11, 2019 ·
Hi, I'm KATHRYN D.
I have the opposite. The Anastrozole I am taking gives me “dry mouth” and all I can taste is my sour tongue. I’m craving pickles because that’s what I taste all the time. I use GC Dry Mouth Gel fro...
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  • Sat Mar 9, 2019 · Like3
Hi, I'm Donna M M.
Yes! Ty!! I think it is fixed now able to eat and going to bathroom a lot can’t keep up with my bags. Hope now soon repair my colan and go from there and also gained 4 lbs 2 months
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  • Tue Mar 5, 2019 ·
I'm Ronda, and I'm a survivor of Leukemia
Good luck with your recovery. My mother got breast cancer at the age of 72 and lived to be 90. I know it must be hard not to have family support.. I myself have gone through chemo (I have leukemi...
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  • Mon Mar 4, 2019 · Like1
Hi, I'm Betti
Part of my chemo. protocol was an antinausea medicine given to me prior to each infusion. My Onc. also prescribed 2 different antinausea meds. to take at home for the first couple of days followin...
2
  • Sun Mar 3, 2019 ·
Hi, I'm Betti
I never really had any issues on Letrozole for 5 years. I had been diagnosed with Osteopenia prior to my BC that got somewhat worse after chemo. so was started on a generic Fosamax which improved ...
2
  • Sat Feb 23, 2019 ·