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Blood Disorder Experiences

Blood Disorder Experiences

  • Hi, I'm Regulus

    Starting Hydroxyurea

    Going through treatment
    Added Sep 15, 2017
    I’m new to this forum, and just starting hydroxyurea therapy for polycythemia vera. My first treatment is today, taking 500 mg 2 times a day. The Dr. will fine tune the doseage over the next months. I was diagnosed w/ PV a couple of months ago. I am 71 years old and physically “fit”. I have several of the PV symptoms and they …
  • Hi, I'm A. Black

    Through the Journey, God is Good!!!

    Just some thoughts
    Updated May 21, 2015

    Hello Everybody:

    My name is Alonzo Black, a blood disorder patient who has overcome the flares that caused my sickness most of this year. Just like some people who are trying to find some type of solution to their problems or go back what is considered “normal” life, I wanted to encourage someone who is on the same journey—while you are goin…

  • jk
    jk
    Hi, I'm jk
    jk

    Ms

    My diagnosis
    Added Apr 16, 2015

    I have low blood platelets. I was scheduled for knee replacement surgery a month ago. Was all ready to go and waiting for the doc to come in. I was prompted to ask what my platelets count was. When Dr. Momburger came in he said sorry we cannot do the surgery as your platelets are too low. So, took iv out, got dresses, and went to breakfast w…

  • Hi, I'm Ronald C M.

    Water and more water for a cold

    Just some thoughts
    Added Feb 24, 2014

    I have an immune deficiency that requires monthly infulsions of immunoglobulins. I have been receiving infusions for 6 years and in December my doctor wanted to give me a three month holiday from the infusions. In the middle of winter, I made it two + months without getting sick-eating well and exercising. Last week, I started to feel the dra…

  • Hi, I'm SARAH J L.

    Living With Lupus, MDS, and Bone Marrow Failure

    Ongoing monitoring
    Added Dec 31, 2013

    It’s going on another year of labs and doctors. I’m 70 now, and thought these were the “golden years.” Nothing golden about them for me. My lack of platelets and Coumadin leave my body looking like I get beaten up every day!

    I have wonderful doctors, and sometimes they get as frustrated as I am, as I have a disease without a cure, little tr…

  • RH Factor 5 Leiden disorder

    Rh Factor 5 Leiden disorder

    Overcoming fear
    Added Dec 16, 2013

    I have been through 8 life threatening spells with blood clots.And nomatter how hard i try that fear is always there.I had my last ones in 2011.Right leg full.The Doctor said he had never seen anything like it.But i spent a month in the hospital.running wires down my legs,not being allowed to get up.Simple symptoms 3 days prior i couldnt stop vo…

  • Hi, I'm Thomas R.

    Symptoms

    What I've learned
    Added Oct 23, 2013

    So far I am a gob of symptoms without a disease to blame them on and work on. I have exersional edema ( I can barely walk around the block and get panic if I walk to the store two blocks from my house), edema ( with those anoying rashes on the shins that sometimes just make me want to scratch of the skin ), polyneuropathies that sometimes hurt …

  • Hi I am June and I have a type of bone and blood cancer they are calling it MDS no cure at this time

    Blood Disorder

    Going through treatment
    Added Jan 10, 2013

    I have been going threw Chemo Treatments for 2 years now and it is doing good for me Thank God cause he is with me ever new day I get to be able to get around and go fishing and camping what me and my Husband love to do Why I am going threw this only God no,s some times we have to go threw bad times and Jesus died so we could live and get forg…

  • Hi, I'm Susan M D.

    Thank You

    Planning for after treatment
    Added Nov 15, 2012

    Just a quick note to share that my Bone Marrow biopsy done by Dr. Ansari came back benign, which you can imagine was a great relief. However it does not explain what is going on with my blood. Dr. Ansari and I talked and are going to continue monitoring this situation with my Primary Doctor in Michigan taking the lead as she has been doing. …

  • Hi, I'm Susan M D.

    Thoughts and Thanks

    Ongoing monitoring
    Added Nov 4, 2012

    I am a new patient of Dr. Ansari. He is seeing me as a Hematologist. I have so much going on in my body. I was diagnosed with TOTAL BODY AUTOIMMUNE DISEASE 11 years ago. No specific diagnosis. My body is attacked thru-out as time goes by. Dr. Ansari was wonderful along with his staff on my first visit. I was very comfortable. I am still …

Favorite Blood Disorder Experiences

  • jk
    jk
    Hi, I'm jk
    jk

    Ms

    My diagnosis
    Added Apr 16, 2015

    I have low blood platelets. I was scheduled for knee replacement surgery a month ago. Was all ready to go and waiting for the doc to come in. I was prompted to ask what my platelets count was. When Dr. Momburger came in he said sorry we cannot do the surgery as your platelets are too low. So, took iv out, got dresses, and went to breakfast w…

  • Hi, I'm A. Black

    Through the Journey, God is Good!!!

    Just some thoughts
    Updated May 21, 2015

    Hello Everybody:

    My name is Alonzo Black, a blood disorder patient who has overcome the flares that caused my sickness most of this year. Just like some people who are trying to find some type of solution to their problems or go back what is considered “normal” life, I wanted to encourage someone who is on the same journey—while you are goin…

  • Hi, I'm SARAH J L.

    Living With Lupus, MDS, and Bone Marrow Failure

    Ongoing monitoring
    Added Dec 31, 2013

    It’s going on another year of labs and doctors. I’m 70 now, and thought these were the “golden years.” Nothing golden about them for me. My lack of platelets and Coumadin leave my body looking like I get beaten up every day!

    I have wonderful doctors, and sometimes they get as frustrated as I am, as I have a disease without a cure, little tr…

  • Hi, I'm Ronald C M.

    Water and more water for a cold

    Just some thoughts
    Added Feb 24, 2014

    I have an immune deficiency that requires monthly infulsions of immunoglobulins. I have been receiving infusions for 6 years and in December my doctor wanted to give me a three month holiday from the infusions. In the middle of winter, I made it two + months without getting sick-eating well and exercising. Last week, I started to feel the dra…